Where do I start?
For many of you, this picture shouldn’t be a surprise – for others it is likely shocking. I’m in a power wheelchair on Thanksgiving with Mary Ann, all three kids, our close friends the Meads and their kids, and Mary Ann’s nephew and his partner. We’re also in our new house, a mid-century modern Eichler home in Walnut Creek. Everything about this picture and this event is about changes to my life.
So where do I start? With my foot dropping last year when Mary Ann and I walked our dogs every morning at 6AM at our other house in Orinda? Or with going to numerous doctors and check ups and MRI’s and worried looks and denial on my part of the final diagnosis? Or the rainy day last January when I was officially told I had ALS, where then was followed a parade of health professionals including palliative care to offer their support. Went straight to the Beach Chalet for burgers and beer, and tears.
I’ll make this blog a series of remembrances, both serial and free stream of consciousness, and current events about what my life is like now. With that, I leave with a picture of me a little over a year ago. That’s who I was – I am different now.
This blog is not about seeking sympathy. Instead I want it to be about hope, overcoming adversity, and celebrating life in real time.