About 6 months ago, a former colleague and friend, Michele Wolpe, decided to film a documentary about my journey through ALS called “No Time To Waste” . The documentary was originally conceived as a short pilot for a longer film documenting the inspiring journeys of people going through chronic diseases with courage and grace. It was originally going to be 7 minutes but eventually clocked in at 24 minutes. Michele gave me permission to share it with my readers. In return, she would like to hear your feedback. Fair warning, there are some emotional parts, and likely a surprise for others in the way I look now. Just trying to keep it real.
Click on the link to run the video : https://www.dropbox.com/s/encsn3gfm5ms5dl/NoTimeToWaste_Final.mp4?dl=0
More to come…
Welcome to my world 
I am honored to have shared your life’s story via Robin Nedboy and now your blog and this documentary. Twas MANY years ago when we met you in Brooklyn!
Love from Pat and Helen Bauer
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And I have been also staying current with you guys through Robi,. We’re all a long way from Brooklyn. Thanks for following the blog.
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And Harry you do know that Donna and Barry became part of my educational family out here! Donna was already in Visalia when we were still in Valley Forge and she gave me K-12 contacts for employment out here. I had never heard of Visalia even though I had grown up in Berkeley. A trifle humbling!!!
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Hey, Harry, I think I recognized some of the extras in the movie. I know I’ve taken some lessons from the way you’ve dealt with this . . . . and we may yet have a few more A’s games in us. Thanks, brother, for smiling, and for valuing every day. Chris
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… And you look mahvelous!
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Dear One,
Your blog posts are amazing! The video captures how you and Mary Ann are such an inspiration. I believe it will certainly have an impact on others. Yes we all must lighten up! I will follow your lead my friend! Love you loads!♥️♥️
Donna
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Your kind words mean so much to me. It’s a blessing to have you as my friend.
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Guardaré por siempre este hermoso recuerdo de mi hermano Harry. Te quiero mucho.
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My life goal is to create the community that you have built—and to care for those in my own community as well. I’ve been sad to be so far away during your journey but you are all on my mind often! Xoxo
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Wow… just finished watching “No Time to Waste”. The strength and spirit of so many friends is palpable. Thank you Harry, Mary Anne and so many others for sharing this journey with us. You all epitomize what it is to be human: open; honest and courageous beyond measure. And here’s to a good Manhattan!!!
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And consider yourself part of that community. As past presidents, we are brothers in arms.
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What a wonderful film. Mary Ann’s and your honesty and presence is one of the things that makes you both so special (and wonderful friends). Again, thanks for sharing your journey with us.
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Harry this documentary is beautiful beyond any words. You truly are a mensch. I first recognized that when we met at Camp Lymelight so many years ago. Through the years you have continued to inspire all those who have had the fortune to know you.
Love always, Barbara Nuzzi (Berger)
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Thank you so much for your kind words and feedback. We missed you at the reunion and I hope you saw the pictures. I have such fond memories of Lymelight and am blessed with so many enduring relationships.
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When I reached out to my former boss who was the executive director of The ALS Association (I think you guys spoke), he told me how critically important it is for ALS patients to be positive and live each day to the fullest extent possible. You and Mary Ann exemplify those qualities each and every day. As Barbara wrote, it is our good fortune and by the grace of God that you have allowed us to be a part of your lives. You have no idea what an impact you have had — and continue to have — on so many people; our lives are richer because of you both,
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As I am fortunate to have you as my friend and part of my community. So glad they you liked the video.
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Thank you for sharing this incredible film. Your honesty and openness continue to bring so much to all our lives. Sending love to you and your family.
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Thank you so much for your kind words. I am living life to my fullest. I’m so glad you’ve found inspiration from my blog and the film.. I’m trying to use my time to reach others
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